Cancer Resources

General Cancer Information and Support

American Cancer Society

This is a good starter site for learning about the different types of cancer and treatments available.  It seems to place a bit more emphasis on some of the more well-known cancers, such as breast, colon, lung, and prostate, but the information is solid and reliable.

Lance Armstrong’s LiveStrong Foundation

This site and its sister site LiveStrong.com have a wealth of information for cancer patients, survivors, and caregivers.  One of the very best resources available from any organization is a set of books: LiveStrong Guidebook and LiveStrong Guidebook Planner and Journal.  These books walk you through every step of the process from obtaining a solid diagnosis, evaluating treatment options, and tracking your care.  They are incredibly useful books and I am so grateful to my cousin, Jon, for sending them to me and alerting me to the great resources available on the LiveStrong sites.

Research, Articles, Reports

Medscape News

The site is an absolute treasure trove of articles and research related to all types of cancer and therapies.  The information is not strictly related to cancer, but the articles that are related to cancer are in-depth and very solid.  There is even a free mobile app for your phone or iPad.

U.S. National Library of Medicine: PubMed

These are high-quality medical journal articles, many of which are the same ones your doctor gets.  My doctor said this is a great site for information.  Again, this is not strictly cancer information, but the cancer articles and reports are excellent.

National Comprehensive Cancer Network

My friend, Cindy, clued me in to this site and it is another one just packed with useful information.  This is one is devoted to cancer, cancer diagnosis, and treatment.  You will find NCCN Guidelines for Patientstreatment summaries by type of cancer, as well as information about living with cancer, and resources and tools to help your family, friends, and caregivers.  Some of the site is restricted to those with medical access, but there is a lot of useful information available to the general public.

OncoLink

This site is the product of the University of Pennsylvania and provides access to a crazy amount of articles, experts, support groups, and blogs all related to living with, and beating, cancer.

Cancer Treatment Facilities

U.S. News & World Report Best Hospitals: Cancer

http://health.usnews.com/best-hospitals/rankings/cancer

U.S. News & World Report has long been regarded as providing one of the most reliable rankings of cancer hospitals in the U.S.  The top four institutions, listed below, have websites that provide access to articles written by their MDs, information about clinical trials, and how to contact them if you are interested in being seen by one of their physicians.  These are the best of the best when it comes to cancer treatment in adults.

M.D. Anderson (Houston, TX)

Memorial Sloan-Kettering (New York)

Johns Hopkins (Baltimore, MD)

Mayo Clinic (Rochester, MN; Scottsdale, AZ; and Jacksonville, FL)

Physician Background Information

I probably don’t have to tell you this, but it is imperative that you do a little research on your doctor(s) if you are not already familiar with him or her.  Your doctor might be the nicest person in the world, but you need to understand where they received their training and if there are any grievances against them.  There are a few sites that provide some basic background information such as education, prior work history, specialties and fellowships.  One of the most popular sites is:

Health Grades

Aside from searching a site like Health Grades, the best thing to do is simply Google the doctor’s name.  It helps to have the full name with initials and to enter the query like this “Dr. Davey B. Daniel”.  That will give you the most accurate results and help you weed through all the other Dr. Daniels who might exist out there.  Then just spend some time scanning through the search results.  You will come across enough information about the doctor to give you positive or negative feedback.

Patients Against Lymphoma Facebook Group

This group posts links to relevant articles on various cancer topics every day.

Treatment Information

Scott Hamilton’s Chemo Care

This is a pretty helpful site, started by the former Ice Skating champion, Scott Hamilton who is a cancer survivor.  The site’s focus on mostly on treatment – what chemotherapy is, what to expect, how to eat during chemotherapy, and what to do before and after chemo.  There is also an online community where you can talk to other patients and share experiences.

Head Covers Unlimited

For those who may lose their hair during chemo, this site offers a wide range of products.  Wigs, scarves, hats, all especially designed for those experiencing alopecia.

Lymphoma Specific Information

Leukemia & Lymphoma Society

A very good, basic resource on topics related to blood cancers.  Explains where to get additional information and they have an information and support network to help you.

Lymphoma Research Foundation

Absolutely some of the best information available on lymphoma.  They have booklets you can download on the different types of lymphoma.  These booklets are very detailed and cover every aspect of the illness from diagnostic testing, to treatment options and what to expect.

Lymphomation.org

This site is the home of Patients Against Lymphoma (the same Facebook Group mentioned above).  The navigation is a little clunky, but if you take the time to weed through everything, you will find some very good news articles related to lymphoma.  There’s additional information such as checklists of things to ask your doctor, support groups, and tools & tips for preparing for virtually everything you will experience during your journey with cancer.

Drug Shortages

Sadly, there are currently drug shortages of chemotherapy medicines that could affect patients.  The following sites state which drugs are experiencing shortages, as well as which shortages have been resolved.

FDA Drug Safety Information

American Society of Health System Pharmacists

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