20 Great Cancer Information Resources

25 Aug

Yesterday was a good day!  I felt good and my energy levels were pretty high.  This whole waking up early and feeling wide awake thing is throwing me for a loop.  What a horrible side effect of chemotherapy!  ha ha!  Pumpkin was a little grumpy.  We weren’t sure if that’s because we used him on the blog without his consent or if he didn’t get enough love from his blog friends.  It’s always hard to tell what’s really bothering him.  :)

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As I can, I’m going to post lists of useful information, sites, articles that I come across that might be helpful to someone else who may be going through the same thing.  Today’s list is a set of sites that I’ve compiled through my research about cancer, and specifically lymphoma.  A cancer diagnosis is overwhelming and there is so much you have to learn in a short amount of time.  These are some of the best, most reputable sites I’ve come across.

I hope that you will never need these, but if you do or if there is someone in your life just starting this journey, feel free to share this with them.  If you have walked this road yourself and have recommendations for other sites I could add, please let me know.  I expect this to be a living list that evolves over time.

General Cancer Information and Support

American Cancer Society

This is a good starter site for learning about the different types of cancer and treatments available.  It seems to place a bit more emphasis on some of the more well-known cancers, such as breast, colon, lung, and prostate, but the information is solid and reliable.

Lance Armstrong’s LiveStrong Foundation

This site and its sister site LiveStrong.com have a wealth of information for cancer patients, survivors, and caregivers.  One of the very best resources available from any organization is a set of books: LiveStrong Guidebook and LiveStrong Guidebook Planner and Journal.  These books walk you through every step of the process from obtaining a solid diagnosis, evaluating treatment options, and tracking your care.  They are incredibly useful books and I am so grateful to my cousin, Jon, for sending them to me and alerting me to the great resources available on the LiveStrong sites.

Research, Articles, Reports

Medscape News

The site is an absolute treasure trove of articles and research related to all types of cancer and therapies.  The information is not strictly related to cancer, but the articles that are related to cancer are in-depth and very solid.  There is even a free mobile app for your phone or iPad.

U.S. National Library of Medicine: PubMed

These are high-quality medical journal articles, many of which are the same ones your doctor gets.  My doctor said this is a great site for information.  Again, this is not strictly cancer information, but the cancer articles and reports are excellent.

National Comprehensive Cancer Network

My friend, Cindy, clued me in to this site and it is another one just packed with useful information.  This is one is devoted to cancer, cancer diagnosis, and treatment.  You will find NCCN Guidelines for Patients, treatment summaries by type of cancer, as well as information about living with cancer, and resources and tools to help your family, friends, and caregivers.  Some of the site is restricted to those with medical access, but there is a lot of useful information available to the general public.

OncoLink

This site is the product of the University of Pennsylvania and provides access to a crazy amount of articles, experts, support groups, and blogs all related to living with, and beating, cancer.

Cancer Treatment Facilities

U.S. News & World Report Best Hospitals: Cancer

http://health.usnews.com/best-hospitals/rankings/cancer

U.S. News & World Report has long been regarded as providing one of the most reliable rankings of cancer hospitals in the U.S.  The top four institutions, listed below, have websites that provide access to articles written by their MDs, information about clinical trials, and how to contact them if you are interested in being seen by one of their physicians.  These are the best of the best when it comes to cancer treatment in adults.

M.D. Anderson (Houston, TX)

Memorial Sloan-Kettering (New York)

Johns Hopkins (Baltimore, MD)

Mayo Clinic (Rochester, MN; Scottsdale, AZ; and Jacksonville, FL)

Physician Background Information

I probably don’t have to tell you this, but it is imperative that you do a little research on your doctor(s) if you are not already familiar with him or her.  Your doctor might be the nicest person in the world, but you need to understand where they received their training and if there are any grievances against them.  There are a few sites that provide some basic background information such as education, prior work history, specialties and fellowships.  One of the most popular sites is:

Health Grades

Aside from searching a site like Health Grades, the best thing to do is simply Google the doctor’s name.  It helps to have the full name with initials and to enter the query like this “Dr. Davey B. Daniel”.  That will give you the most accurate results and help you weed through all the other Dr. Daniels who might exist out there.  Then just spend some time scanning through the search results.  You will come across enough information about the doctor to give you positive or negative feedback.

Patients Against Lymphoma Facebook Group

This group posts links to relevant articles on various cancer topics every day.

Treatment Information

Scott Hamilton’s Chemo Care

This is a pretty helpful site, started by the former Ice Skating champion, Scott Hamilton who is a cancer survivor.  The site’s focus on mostly on treatment – what chemotherapy is, what to expect, how to eat during chemotherapy, and what to do before and after chemo.  There is also an online community where you can talk to other patients and share experiences.

Head Covers Unlimited

For those who may lose their hair during chemo, this site offers a wide range of products.  Wigs, scarves, hats, all especially designed for those experiencing alopecia.

Lymphoma Specific Information

Leukemia & Lymphoma Society

A very good, basic resource on topics related to blood cancers.  Explains where to get additional information and they have an information and support network to help you.

Lymphoma Research Foundation

Absolutely some of the best information available on lymphoma.  They have booklets you can download on the different types of lymphoma.  These booklets are very detailed and cover every aspect of the illness from diagnostic testing, to treatment options and what to expect.

Lymphomation.org

This site is the home of Patients Against Lymphoma (the same Facebook Group mentioned above).  The navigation is a little clunky, but if you take the time to weed through everything, you will find some very good news articles related to lymphoma.  There’s additional information such as checklists of things to ask your doctor, support groups, and tools & tips for preparing for virtually everything you will experience during your journey with cancer.

Drug Shortages

Sadly, there are currently drug shortages of chemotherapy medicines that could affect patients.  The following sites state which drugs are experiencing shortages, as well as which shortages have been resolved.

FDA Drug Safety Information

American Society of Health System Pharmacists

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4 Responses to “20 Great Cancer Information Resources”

  1. Becky August 25, 2011 at 5:36 am #

    Wow!! You amaze me. Love getting up to your posts. May the Lord rain blessings down on you today. By the way, I think Pumpkin knew. Love you.

    • rachturner August 25, 2011 at 8:45 am #

      I think he knew, too! :) Thank you, Becky. Love you, too. Give my mom a big hug from me next time you see her.

  2. Kathy August 27, 2011 at 2:18 pm #

    I love, love, love that you’re gathering this info and putting out there for others to make good use of. Thanks for all of your time and energy spent doing this. Many people will benefit from it in times to come.

    • rachturner August 27, 2011 at 5:27 pm #

      It’s just a distraction for me – somewhere to focus my energy. :) Hopefully, it will be helpful to someone who has to go down this icky road.

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